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Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.
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342: You Are Beautiful: Building a Business, Finding Your Voice with Raquel Caramello
What happens when you take a simple message like “You Are Beautiful” and turn it into a business that's changing lives? As we wrap up Down Syndrome Awareness Month, Heather sits down with Raquel Caramello, a jewelry designer, entrepreneur,
341: The Harm in Using People with Disabilities as “Inspiration” in Viral Videos (Throwback to Ep. 169)
Here we are, halfway through October and Down Syndrome Awareness Month, revisiting a conversation that's just as relevant today as when we first released it in July 2022. We've all seen those viral “feel-good” videos featuring people with d
340 Throwback: What Do You Wish You Knew When You Got Your Child's Down Syndrome Diagnosis? (Ep. 138)
Throwback: What Do You Wish You Knew When You Got Your Child's Down Syndrome Diagnosis? (Ep. 138) It's Down Syndrome Awareness Month, and we're heading back into the archives for a conversation that's just as relevant today as when we first
339: What to Really Be Aware of This Down Syndrome Awareness Month
People with Down syndrome deserve belonging, opportunity, and dignity—without having to prove their worth through achievement. To kick off Down Syndrome Awareness Month, Heather and Micha ask what happens when advocacy becomes centered on a
338: What Does Presuming Competence Actually Look Like?
“Presume competence” is a phrase we hear often in the disability community. But what does it mean when someone also needs significant support? This week, Heather and Micha talk through the tension between believing there may be more happeni
337. Belonging vs. Inclusion: Why the Difference Matters
“Inclusion says you’re allowed to be here. Belonging says this is your place.” In this episode, we’re exploring the difference between being included and being genuinely known, wanted, and valued. We share real-life examples from school, ch
336: What We Need to Know About Disability Policy Right Now w/ Ashley Barlow
Disability policy can feel complicated and overwhelming—but these decisions directly affect the healthcare, education, services, and civil rights of people with disabilities. Today, Heather is joined by attorney, IEP expert, and longtime fr
335: Autonomy for Adults with Down Syndrome w/ Val Schlieder
What does it look like to truly honor the autonomy of adults with Down syndrome? Today we’re joined by our former producer, occupational therapist, sibling, and advocate Val Schlieder to talk about autonomy, infantilization, and the dignity
334: Staying Organized When Our Kids Go Back to School w/ Angela O’Brien
Back-to-school season brings more than new supplies and schedules—especially when you’re raising a child with Down syndrome. There are IEPs, appointments, transportation plans, medical information, therapies, emails, paperwork, and approxim
333. Happiness Is Down Syndrome w/ Misty Coy Snyder
When Misty Coy Snyder (https://mistycoysnyder.com/ )received a prenatal Down syndrome diagnosis during the early days of the pandemic, fear and uncertainty shaped much of her pregnancy. But when her son Jed was born, the joy she experien
332: Back to School Anxiety: Why a New School Year Feels So Big When You’re Raising a Kid With Down Syndrome
Back-to-school season can bring a lot more than new backpacks, school supplies, and first-day photos—especially when you’re raising a child with Down syndrome. In this episode, Heather, Micha, and Mercedes talk honestly about the complicate
331: We’re Back! Catching Up on a Big Summer in the Down Syndrome Community
Episode 331: We’re Back! Catching Up on a Big Summer in the Down Syndrome Community We’re back! After a three-month summer break, we’re catching up on some of the biggest conversations, stories, and moments that happened across the Down syn
330. What We Wish We'd Known About Advocacy
In this final episode of our “What I Wish I Knew” series, we’re taking a step back to reflect on advocacy—what it’s looked like for us over the years, what’s changed, and what we wish we understood earlier. We talk honestly about the emotio
329. What We Wish We'd Known About Functional Medicine
In this episode of our “What I Wish I Knew” series, we’re talking about functional medicine—what it is, what’s helped us, and what we wish we understood earlier. We share real experiences navigating diet changes, supplements, specialists, a
328. What We Wish We'd Known About AAC (Augmentative & Alternative Communication).
In this episode of The Lucky Few Podcast, we continue our “What I Wish I Knew” series with a real and honest conversation about AAC (Augmentative & Alternative Communication) - Supporting Communication Without Limiting It Micha shares her j
327. What We Wish We’d Known About Travel & Accessibility
In this episode, we’re talking about travel and accessibility—what’s actually available, what we’ve learned the hard way (and the helpful way), and the questions that come with it. Fresh off an international trip, Heather shares real-life s
Throwback: From School Plays to Disney Star: Noah Matthews Matofsky
Friends, we’re bringing back one of our favorite conversations — our interview with Noah Matthews Matofsky, who starred as Slightly in Disney’s Peter Pan & Wendy (https://www.disneyplus.com/browse/entity-7b95db94-b7dd-4986-beed-4fd9e884b2fb
Throwback: Episode 3 — College, Expectations, and Ruby’s Rainbow with Liz Plachta
This week we’re revisiting Episode 3 of The Lucky Few Podcast—originally recorded in April 2018. In one of our very first conversations, Heather, Mercedes, and Micah sit down with Liz Plachta, founder of Ruby’s Rainbow (https://rubysrainbow
326. What We Wish We’d Known About Loneliness in honor of World Down Syndrome Day (3/21)
In this episode, we continue our What I Wish I’d Known series in honor of World Down Syndrome Day (3/21) and this year’s theme: Together Against Loneliness. When we first became parents of children with Down syndrome, no one talked to us ab
325. What We Wish We’d Known About Infantilizing
Show Notes In this episode of were talking about infantilizing — what it is, how it shows up, and why it matters. To infantilize someone is to treat them as younger or less capable than they are. For people with disabilities, this often sho
324. What We Wish We’d Known About Inclusion
In this episode of The Lucky Few Podcast, we continue our What I Wish I’d Known series by talking about inclusion — and being honest about how it actually feels. When we hear the word inclusion, we don’t immediately feel hopeful. We feel he
323. What We Wish We’d Known About IEPs
IEPs can feel overwhelming, emotional, and complicated—and that’s because they are. In this episode of The Lucky Few Podcast, we kick off our new season, What I Wish I’d Known About…, by talking about IEPs—what we wish we understood from th
322. Throwback: Elana Meyers Taylor — Gold Medalist & Lucky Mama
We’re bringing back one of our favorite conversations in honor of an extraordinary athlete, mom, and advocate who continues to redefine what’s possible. Elana Meyers Taylor is a five-time Olympian and one of the most decorated athletes in w
321. What We Wish We’d Known (And What We’re Still Learning)
January felt heavy. So instead of pretending we had it all figured out, we talked honestly about what we wish we’d known earlier. In this kickoff episode of What We Wish We’d Known, Heather, Micah, and Mercedes reflect on lessons that only
320. Diving Deeper: Communication, Self-Talk, & Down Syndrome
Today we’re diving deep into the way our children communicate! We’re asking some difficult but important questions about how we support their speech and language. How do our kids feel when people cannot understand their speech? How do they
319. Brain Health & DS: Communication w/Jennifer Gray, SLP
Jennifer Gray is a certified speech-language pathologist with over 20 years of experience working with the Down syndrome community. Today we’re asking her all the questions we’ve forgotten to ask our children’s own speech therapists. When s
318. Diving Deeper: Trauma and Intellectual Disability
Last week we sat down for an interview with trauma expert Dr. Karyn Harvey and today the three of us are unpacking all of our feelings about it. We’re asking ourselves some pretty heavy questions about trauma and intellectual disability. Do
317. Brain Health & DS: Trauma and Intellectual Disability w/Dr. Karyn Harvey
Dr. Karyn Harvey is a psychologist, author, trainer, speaker, and EXPERT in the field of psychology, intellectual disability, and trauma. Have you ever thought of the trauma that individuals with intellectual disabilities face each day? The
316. Diving Deeper: Alzheimer's Disease Prevalence and Treatment, w/Kandi Pickard
Last week we had an important conversation with Dr. Michael Rafii all about the link between DS and Alzheimer’s disease. If you’re still processing everything you learned from that interview, that’s okay. Sit down with the three of us + our
315. Brain Health & DS: Alzheimer's Disease Prevalence and Treatment (w/Dr. Michael Rafii)
As we continue this season on brain health, its time to dive deep into the link between Alzheimer’s disease and Down syndrome. It’s not an easy topic.. and that’s why we are so grateful to have Dr. Michael Rafii with us. He’s a physician-sc
