B.E.N.D.Y. Episode 1: Body Maintenance - Running with Connective Tissue Disorders

Welcome to Episode 1 of the B.E.N.D.Y. series, where we're talking about one of the most important foundations for running with EDS, HSD, and other connective tissue disorders:
B = Body Maintenance
If you're a runner with Ehlers-Danlos Syndrome or hypermobility, you've probably learned the hard way that recovery isn't optional. In this episode, I'm sharing the tools, professionals, and resources that have helped me continue showing up as a Runnah while managing a body that sometimes likes to make things... interesting.
We'll cover:
🏃‍♀️ Physical Therapy
🏃‍♀️ Sports Massage
🏃‍♀️ Acupuncture
🏃‍♀️ Building a knowledgeable care team
🏃‍♀️ Finding providers who actually understand connective tissue disorders
🏃‍♀️ Why body maintenance is training, not an afterthought
Bay State Physical Therapy (Warwick, RI)
locations.baystatept.com/ri/warwick/2080-warwi…
Enea Physical Therapy
eneaphysicaltherapy.com
Connective Tissue Coalition
connectivetissuecoalition.org
Connective Tissue Coalition Provider Resources
connectivetissuecoalition.org/general-5
The Ehlers-Danlos Society Support Group & Charity Directory
ehlers-danlos.com/support-group-and-charity-di…
r/EDS
reddit.com/r/eds
r/EhlersDanlos
reddit.com/r/ehlersdanlos
EDS Facebook Community
facebook.com/share/g/1Dn6odXqTd
Hypermobility & EDS Facebook Community
facebook.com/share/g/1DWg49526C
Jon (Connective Tissue Coalition)
jrmarfan58@aol.com
Running with EDS doesn't mean you're broken. It means your training plan often includes a few more specialists, a little more recovery, and occasionally enough KT tape to qualify as structural engineering.
Whether you're running marathons, run-walking your first 5K, or trying to stay active while managing hypermobility, you're welcome here.
If you've found a body maintenance strategy that's helped you keep running, share it in the comments so other bendy runners can learn from your experience.
#EDS #EhlersDanlosSyndrome #Hypermobility #RunningWithEDS #Runner #Runnah #MarathonTraining #ChronicIllnessAthlete #PhysicalTherapy #KTTape #ConnectiveTissueDisorders
Resources MentionedPhysical TherapyFinding EDS-Informed ProvidersCommunity ResourcesConnective Tissue Coalition Contact